Hi there! Last month, I went to Carly Findlay’s book launch. The atmosphere was lovely and I came away with a copy of her book. I then spent the next few days devouring it.
Carly is an award-winning writer, speaker and appearance activist, writing about disability and appearance diversity issues. She is a proud disabled woman, living with a rare skin condition, ichthyosis. She is an awesome person and I’m glad I’ve met her.
Her memoir, Say Hello, details her life growing up with ichthyosis and how she has come to be proud of her disability and to own it. She speaks honestly of the ups and downs of living with her disability. The highs of family support, fandom, finding her community, loving herself and disability pride – and the lows of people’s ableism*, their pitying attitudes and intrusive questions.
N.B. Ableism = discrimination and/or prejudice against disabled people.
On her website, Carly writes about her book:
There was no one in media or books who looked like me, or to tell me it’s ok to not want to change my appearance, and I didn’t know whether I’d find love – love with another or love for myself. I had to write that book. To be the person Little Carly needed. In Say Hello, I want to show parents who have a disabled child that there is no need to grieve a life lost – because their child is alive and can live a great life with love and support. I want to show readers how to be proud of their identity and their appearance, and love themselves even when the world has told them they have to hide. Representation matters. I hope this book is the start of more people with ichthyosis telling their own story – to shift the focus from the exploitative media we are seeing a lot of. Representation matters because shapes the way ichthyosis is seen, and lets people with ichthyosis see themselves. Disability literature must be disability-led.”http://carlyfindlay.com.au/SayHello/
I related to parts of this book – being the odd-one-out sucks, and escapism through fandom, then finding my people, those who get me, have been saving graces. However, I should say too that my disability is invisible, so I have had more privilege than Carly. For example, I don’t get asked “what happened to my face?” regularly when I’m out and about, and people don’t flinch away from me or avoid touching me. Carly speaks candidly of these sorts of instances in Say Hello. She has faced plenty of discrimination and casual ableism. It sucks and, as Carly details in the book, is exhausting. People, stop it. PSA: check your attitudes and your privilege, drat it, in thinking about, seeing and interacting with disabled people. Stop making assumptions on behalf of us. We’re just going about our daily lives, ‘k? We’re not your bloody inspiration! Seriously, back off. 😡
Carly is unapologetic about her disability activism, politics and pride. From Carly and others like her, I am learning to be the same.
I encourage everyone to read Carly’s book. I thoroughly enjoyed it. It’s an angry memoir in parts (with good reason), as well as being laugh-out-loud funny and heart-warming. Thanks for writing it Carly. I can’t wait to read what you write next!
Buy Say Hello from Booktopia (paperback) and Apple Books (ebook), as well as department stores and bookstores in Australia and New Zealand. Carly is also doing a book tour. Having already visited Melbourne and Sydney (and with the Brisbane event sold out), she’s going to Perth, Albury Wodonga, Wagga Wagga, Canberra and Adelaide as well. See her website (http://carlyfindlay.com.au/SayHello/) for details.