The second lot of posts from Carly’s blog during May, which is Ichthyosis Awareness Month! All in Carly’s/ their own words, not mine.
Ichthyosis Awareness Month – Gina’s return: “With these challenges come with some of the most incredible experiences”.
Say hi to Gina again.
Ichthyosis Awareness Month – Merritt’s story: “It’s nice to get compliments, but it’s also surreal. I mean where do I fit in?”
Ichthyosis Awareness Month – Kelly’s story: “I am an Ichthyosis fighter and survivor.”
Ichthyosis Awareness Month – The Girl Behind the Face: “Life’s rarely been split between either laughter or tears; both have existed simultaneously.”
Ichthyosis Awareness Month – Lea’s story: “A complete stranger on the street, though, is sure that he/she has the answer I’ve been looking for all my life!”
Ichthyosis Awareness Month – Rebecca, Aidan and Caleb’s story: “The XLI doesn’t really bother me but people do make fun of it sometimes.”
Even though Rebecca grew up with a brother who has X-linked Ichthyosis (XLI), she was still unaware of the effect it would have on two of her sons, Aidan and Caleb. Rebecca shares her sons’ story about the daily and long-term effects of their XLI in both the physical and emotional forms. The family is from Australia. Aidan is a swimming champion – he’s done so well this year!
Meet Rebecca, Aidan and Caleb.
Ichthyosis Awareness Month – Andrea’s story: “I’m like a fairy scattering around stardust of my skin all the time.”
She has Ichthyosis form Erythroderma.